Basel based Actelion Pharmaceuticals is focussed on rare diseases such as Niemann Pick Type C which has approximately 500 patients worldwide. As such, the number of doctors with real practical experience diagnosing and treating this disease is also quite small. In order to facilitate collaboration and shared knowledge, we created a digital directory where doctors can create a profile and reach out to other doctors treating similar cases.
In the world of pharma, community platforms are quite unusual due to regulatory issues. We believe this platform is a unique first.